This is Caleb. He just turned 2 and loves big trucks, animals, and doing anything outside. He’s the youngest of 5, with the second youngest being 13! His middle name is Able, from the verse Ephesians 3:20. “Now to Him who is ABLE to do exceedingly abundantly above all that we ask or think…” (emphasis mine), since he is a special, bonus blessing; above all we could ask for.
Early October we brought Caleb to Vanderbilt Children’s ER. Caleb was having “growing pains” in his hips on and off for two months, which suddenly became worse. I just knew we’d finally get an answer, meds to fix it, and be on our way back to our normal lives. Instead, our world was turned upside down.
On the day Caleb turned 23 months old he was diagnosed with stage IV high-risk neuroblastoma. With a very aggressive chemo/radiation/immunotherapy regimen, he was given a 50/50 chance. I felt like God and the devil were flipping a coin for my baby’s life.
The first month after diagnosis was a blur. We spent two weeks straight in the hospital. Scans, biopsy, port placement and the first round of chemo. I spent many nights crying and having hard talks with God. I had to watch my baby being poked, held down, given med after med after med. We told him this is to make his legs better, and mom and dad will be with you, but it was still so very hard on him. And us.
We decided regardless of the outcome, we are going to live like Caleb is going to make it. We are raising a survivor. We just take each day as it comes, one day at a time, and try our best to live by three principles: Love fiercely, Make memories, and Practice Gratitude.
Caleb just finished round 3 of chemo and God has blessed us so much already. Caleb is not just walking again, but RUNNING. He’s growing and gaining weight. We credit this to God’s goodness and all the prayers holding us up right now. We know we still have a long way to go, but we also know God is walking with us each step of the way.
Written by Amanda Massey, mother of Caleb
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